It has taken me a few days to figure out if I wanted to write this as I haven’t known how to put this struggle down on paper, but, here goes.
There is only so much a person can bear. I have seen a difference in all of us lately and knew something had to be done, something needed a shake-up. I spoke to our team and straight away we jumped into action – a one on one meeting (Isaac and his DE) was held the following day. I sat in the room next door and left them to it, to come up with their own plan. I know they chatted about the day to day monotony this illness throws at him/us, sport, school and friends, and with that they came up with a new plan of attack.
By the end of their little powwow they had a ‘contract’ drawn up, all three of us signing it, and with that, we left the clinic. For the first time in weeks, maybe months, I saw a spring in his step and a glint in his eye. HE had made some decisions about HIS condition; he finally had some ‘control’. Off to school he went and off I went and held a meeting with his teachers and aides the following day. The ‘contract’ has now been signed off by all, his teacher went back in and spoke to Isaac and together they drew up the new routine which is now in use. What a difference a few days and a new routine can make!
Sometimes it takes being at the end of the road to see a new route, to start afresh. Let’s hope his spring keeps on bouncing, even though what he deals with doesn’t give him a break.